Emerging Guidelines for Patient Engagement in Research

Emerging Guidelines for Patient Engagement in Research.

There is growing recognition that involving patients in the development of new patient-reported outcome measures helps ensure that the outcomes that matter most to people living with health conditions are captured. Here, we describe and discuss different experiences of integrating patients as full patient research partners (PRPs) in outcomes research from multiple perspectives (e.g., researcher...

Active patient engagement in research.

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Crowdsourcing and patient engagement in research.

Framework for enhancing clinical practice guidelines through continuous patient engagement

BACKGROUND Patient engagement in clinical practice guideline (CPG) development is recommended by multiple institutions and instruments measuring guideline quality. Approaches to engaging patients, however, vary between oversight organizations, quality tools and guideline developers. OBJECTIVE We propose a ten-step framework outlining steps and options for patient engagement in guideline devel...

Patient engagement in research: a systematic review

BACKGROUND A compelling ethical rationale supports patient engagement in healthcare research. It is also assumed that patient engagement will lead to research findings that are more pertinent to patients' concerns and dilemmas. However; it is unclear how to best conduct this process. In this systematic review we aimed to answer 4 key questions: what are the best ways to identify patient represe...